tag:blogger.com,1999:blog-3471195334228619129.post2910081015222242809..comments2023-10-31T10:07:02.100-05:00Comments on Taking It Day By Day: And Then The Walls Came Tumbling DownAzaerahttp://www.blogger.com/profile/00778026696324592463noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3471195334228619129.post-26372188213306490312009-03-17T10:17:00.000-05:002009-03-17T10:17:00.000-05:00oh my god. sweety. I don't even know what to say. ...oh my god. sweety. I don't even know what to say. Let me know whats going on when you bring all this up to a doctor. I'm thinking of you!!! Hopefully he is just a late bloomer.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-54930592814220849692009-03-17T09:37:00.000-05:002009-03-17T09:37:00.000-05:00I hope you are wrong. I would be doing the same th...I hope you are wrong. I would be doing the same thing if I were in your shoes, and you are right that you know him best. But please let the doctors makes that diagnosis before you totally freak out. I hope you keep on them and get those appts. moved up.CLChttps://www.blogger.com/profile/08030787972960755420noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-6105196526998402092009-03-15T22:42:00.000-05:002009-03-15T22:42:00.000-05:00As I was reading your post I kept thinking, "oh no...As I was reading your post I kept thinking, "oh no, oh no..." But as hard as it is, try not to give in to panic or fear. He may not be blind and only time and more doctors will tell that for sure. And if he is, you and C will deal with it with the same grace and strength that you've dealt with every moment of his life. (((hugs)))Amyhttps://www.blogger.com/profile/08339920449924488366noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-40620633672644017902009-03-15T20:44:00.000-05:002009-03-15T20:44:00.000-05:00I followed a link, too, and was moved by your post...I followed a link, too, and was moved by your post. My thoughts and prayers are with you and my prayers for Skyler's sight and his health.Buttercuphttps://www.blogger.com/profile/03804094230127512943noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-59966704008975947052009-03-15T19:27:00.000-05:002009-03-15T19:27:00.000-05:00oh, breathe, breathe. At least you are looking and...oh, breathe, breathe. At least you are looking and noticing Skyler;s development! You have to keep after these doctors. I hope that he is just too young to focus, or maybe his vision is poor. Hopefully the appt. can get moved up and you can find out what is going on.<BR/><BR/>and if he does have limited vision, I know you guys can get him through it! hugsYa Chunhttps://www.blogger.com/profile/08816837461370619194noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-75011340173246554102009-03-15T18:44:00.000-05:002009-03-15T18:44:00.000-05:00First take a deep breath. Everything that you desc...First take a deep breath. Everything that you described with his eyesight is exactly what lily did or even still does. I know that ages not blind but I do believe she is visually impared somewhat. There are different types of nystagmus. Has he had it since birth or did it just manifest over time? If he has had it since birth, its more likely to be connected to the optic nerve. If he hasn't, and lily's showed up around her due date, its less likely to be related to a neurological problem.I know that its scary. I do, but don't get ahead of yourself. <BR/><BR/>His adjusted age is still only 2 months. I'd say that its very recent that lily started looking at things and her adjusted age is 5 months. <BR/><BR/>Breathe. I'm going to email you my phone number because I'd love to chat with you if you have time. <BR/><BR/>I've been worried that all these things are connected with lily too. Now you've got me thinking...Beckyhttps://www.blogger.com/profile/04161170990042501514noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-54149509098982240122009-03-15T18:43:00.000-05:002009-03-15T18:43:00.000-05:00Wow. I don't know you at all. I just followed a ...Wow. I don't know you at all. I just followed a few links and ended up here. But I am so, so sorry for your family right now. I can only imagine what you must be feeling. I hope that your next Dr. visit brings information, understanding, and hope. Please keep posting and let us know how you're doing.Karenhttps://www.blogger.com/profile/10167975377269696346noreply@blogger.comtag:blogger.com,1999:blog-3471195334228619129.post-26253582917864081462009-03-15T16:34:00.000-05:002009-03-15T16:34:00.000-05:00The last line of your post knocked the breath out ...The last line of your post knocked the breath out of me. I am so sorry for the unfairness of the universe. <BR/><BR/>I am sending strength, love, and support to your entire family.Staciehttps://www.blogger.com/profile/01471803757485977959noreply@blogger.com