Okay, so if you read the post beneath this, I finally managed to take a video of what he does, I intend to show this to his neuro to help the diagnosing process. But I thought I might as well get everyone else's take on it. Especially anyone who's seen a seizure that looks like this before.
3 comments:
I showed the video to my husband, too. Both of us remember when our kids did this as infants. We have 4 kids, and I think all of them did it to some degree or another. None of them did it for very long... maybe a couple of weeks? I wish I could remember. And they didn't do it all the time. But they did do it.
I would show it to your doctor, because if it is seizures, then he needs treatment. But there's at least hope that it's just him experimenting with how things feel/look/sound when he shakes his head. I imagine experimentation of this kind would be different for a visually impaired child than for a neurotypical child, so there's less info for you on what to expect and what's typical. Also remember that what's typical isn't even an accurate predictor for healthy kids. Zoe made loud clicking noises when she nursed. Loud enough that you couldn't talk on the phone without people asking if there was something the matter with your phone. Quinn would make this strangling noise when he inhaled whenever he was happy and content. It sounded awful to everyone else. But it sounded nice to our family because he only did it when he was very happy and comfortable. There's a chance that Sky just likes shaking his head.
The head shaking doesn't look exactly like what my Ashley does. She will drop her head forward a little bit more and the movement is not as exaggerated.
When he does this, can you interrupt the movement by talking to him or touching him? That's one sure indicator of a seizure - you cannot stop a seizure. If he immediately responds to you, it is not a seizure.
I think it is a great idea to show this to your neuro, but I agree with Karen - he could just be experimenting with different sensations - something kids with visual impairments do a lot.
You're the mom and I believe in a mother's instinct. So, if you are concerned, you should follow up.
That being said, I've also had three children. It seems to me that they discover ways to make them feel different and they like it. The best example is of kids making themselves dizzy. They love to do it and it usually doesn't mean anything, unless is is something they do over a long period of time...months.
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