Aaaand he confirmed what I already knew, and what I already told all of you earlier on in my blog. Skyler can see shadows, and light, and we're not sure if there's much else. His optic nerves are small, his eyes technically are fine, his brain is (probably) fine, but the nerves connecting the two are small and don't let in much light which means he cannot see much. The doctor is hopeful he says that he might be able to see shapes and may even be able to walk without a cane. We are going to monitor him over time, we're going back in six months. He may be able to focus a little better later on. BUT there is nothing that can be done about hypoplasia. His optic nerves are just like that, and no one can fix it.
And remember I mentioned something called septo-optic dysplasia? Well I asked him, and he said yes that is the reason the endocrinologist recommended he check Skyler out, and after he was done his examination I asked if it fit, and he said Yes. This is consistent with the diagnosis of Septo-Optic Dysplasia or de Morsier's Syndrome. In other words ladies and gentlemen, I was correct. So our lovely new opthomologist is referring us to the CNIB which is the Canadian National Institute for the Blind. There we will get involved with the Early Intervention program. Which will be awesome, lots of resources and help with his development from early on. I really appreciated that the opthamologist said that if we the parents were concerned about his vision then he was as well. I liked that he took us seriously and didn't talk down to us like we were idiots. Plus the sexy accent didn't hurt things either.
Oh and one more piece of good news. The opthamologist said there is no reason to believe that it's hereditary. He told us not to worry about our future children having it.
So to make my point, don't doubt yourself too much and if you know in your heart something isn't right don't let people tell you to just forget about it and not to worry about it and make you feel like you're crazy. Oh and as for me and how I'm holding up, I'm great. I now know what is wrong with his vision more or less, and I know what we can do about it. It can't be fixed but we can definitely work with it. And Skyler? Well he is as happy as he always was.